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She faced major hurdles in her rare disease fight. These barriers can cost lives, experts say | Globalnews.ca

Global News
Summary
Nutrition label

64% Informative

Madi Vanstone has cystic fibrosis, a genetic condition that targets the digestive system and lungs.

Madi was told by doctors she would likely need a lung transplant by the age of 16 .

A new drug brought her lung function back to that of a healthy child, but it came with a $ 350,000 price tag.

Despite getting temporary partial coverage from insurance and a discount from the drug manufacturer, Madi still faced around $100,000 a year out of pocket without the provincial government’s help.

VR Score

62

Informative language

59

Neutral language

65

Article tone

informal

Language

English

Language complexity

46

Offensive language

not offensive

Hate speech

not hateful

Attention-grabbing headline

not detected

Known propaganda techniques

not detected

Time-value

short-lived

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