This is a B.C. news story, published by vancouversun, that relates primarily to Charleigh news.
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replacement infusionsvancouversun
•Health
Health
69% Informative
Charleigh Pollock, 9 , is the only child in B.C. with Batten disease and one of fewer than 20 in Canada .
A committee recommended last week that funding will soon end for the enzyme-replacement infusions she receives biweekly for the rare neurodegenerative disorder.
Charleigh faces “rapid deterioration, irreversible loss of function and ultimately death,” her mother says.
Health Minister Josie Osborne has directed staff to “urgently review all of the facts”.
Charleigh is now the first child in the world to have this treatment discontinued, Day says.
Day says in a publicly funded health-care system, the $1-million annual cost should not be a deciding factor in “whether a child lives or dies” Fales said she wasn’t expecting to have to fight to keep her daughter on the drug.
VR Score
71
Informative language
68
Neutral language
76
Article tone
informal
Language
English
Language complexity
49
Offensive language
not offensive
Hate speech
not hateful
Attention-grabbing headline
not detected
Known propaganda techniques
not detected
Time-value
short-lived
External references
10
Source diversity
6
