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B.C. ending rare drug coverage means girl will ‘suffer horrifically,’ family says | Globalnews.ca

Global News
Summary
Nutrition label

66% Informative

Nine-year-old Charleigh Pollock was diagnosed with a neurological disorder known as Batten disease.

She developed seizures and mobility loss and began to decline rapidly.

She was put on a drug called Brineura , which costs about $1 million per year.

The drug stabilized Charleigh and left her seizure-free and she's thriving, her mother says.

But last week , her physician informed them the provincial government had discontinued funding for the treatment.

VR Score

61

Informative language

56

Neutral language

52

Article tone

informal

Language

English

Language complexity

46

Offensive language

not offensive

Hate speech

not hateful

Attention-grabbing headline

not detected

Known propaganda techniques

not detected

Time-value

short-lived

Source diversity

1

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