Family Fights for Daughter's Drug
This is a Batten news story, published by Global News, that relates primarily to Charleigh news.
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Batten diseaseGlobal News
•Health
Health
B.C. ending rare drug coverage means girl will ‘suffer horrifically,’ family says | Globalnews.ca
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66% Informative
Nine-year-old Charleigh Pollock was diagnosed with a neurological disorder known as Batten disease.
She developed seizures and mobility loss and began to decline rapidly.
She was put on a drug called Brineura , which costs about $1 million per year.
The drug stabilized Charleigh and left her seizure-free and she's thriving, her mother says.
But last week , her physician informed them the provincial government had discontinued funding for the treatment.
VR Score
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