Alix Oxlade's son diagnosed with cystic fibrosis
This is a UK news story, published by Guardian, that relates primarily to Kaftrio news.
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Cystic Fibrosis TrustGuardian
•‘Real hope’ for cystic fibrosis patients as NHS rolls out life-changing drug
76% Informative
Cystic fibrosis is caused by a defective protein that allows mucus to build up in the lungs, bowels and other organs and can lead to chronic infections that worsen through life.
Cystic Fibrosis Trust played a key role in campaigning for the new drugs, in particular the modulator Kaftrio to be made available in the UK .
“I spent much of my adolescence in hospital on intravenous antibiotic drips to treat my lung and pancreas illnesses. Some people die at a very young age from cystic fibrosis and it looked like I was going to be one of those. I sort of made peace with that. Then Kaftrio came along. Since then, my health has been restored, I have graduated and I’m now doing a master’s degree. My life has been transformed.”.
VR Score
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