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Chronic Fatigue SyndromeBBC
•73% Informative
Edina Slayter-Engelsman lived in Scotland for more than 30 years before she was diagnosed with ME/CFS.
The 57-year-old returned to the Netherlands to end her life in what she described as an "off-ramp" from her suffering.
She was diagnosed in February 2020 and within a few weeks , she was bedbound.
She described it as like being stuck inside a spider’s web.
Edina 's family approached BBC Scotland News to share her experience in the hope of raising awareness of the lack of research and support for people with the condition in Scotland .
DecodeME is examining the DNA of 20,000 participants to investigate genetic factors.
Prof Chris Ponting , who leads the study, says research into the condition is a decade behind other diseases due to a lack of funding.
He hopes the first results of the study will be published within six months .
VR Score
68
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60
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