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progressive motor neuron diseasesilive
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70% Informative
Brian Moffett , 66 , has ALS , a progressive, incurable, progressive motor neuron disease.
The Staten Islander has lost nearly all mobility, save for some movement in his neck and face, and a bit of dexterity in one hand.
He could have died on his own terms with New York's Medical Aid in Dying Act.
The act would have allowed terminally ill individuals with fewer than six months to live the choice of self-administering prescribed life-ending medication.
Currently, just 10 states allow medical aid in dying in the U.S. Delaware ’s state Legislature narrowly passed the End-of-Life Options Law on June 25 ; the bill still awaits Gov. John Carney signature.
ALS Association : Average survival time for an individual diagnosed with the disease is three years .
ALS has stolen Moffett ’s ability to roam and live freely, but it won’t take away his memories.
Moffett urged New York lawmakers one more time: “Pass it.” Demanding to die on his own terms weighs heavily on Moffett , especially when he remembers everything and everyone he holds dear.
VR Score
68
Informative language
66
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18
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English
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35
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